Optimising care for chronic intestinal failure patients

Patients with chronic intestinal failure (CIF) rely on total parenteral nutrition (TPN), which is typically administered through a central venous access device (CVAD). Due to the chronic nature of this condition, patients and caregivers receive training on how to prepare the TPN bag, connect and disconnect the CVAD, and maintain the equipment in the home setting, this strategy is called home parenteral nutrition (HPN). HPN is a complex and time-consuming treatment that requires careful coordination between healthcare providers, patients, and caregivers to be successful. Moreover, optimal care and coordination by a multidisciplinary nutrition support team are essential to reduce the risks of complications. This thesis presents several studies that aim to improve the overall care provided to CIF patients.