Tangled: Understanding family caregivers in a palliative care context via qualitative research, ethics, and comic art

This thesis focuses on family care within palliative care. When people wish to die at home, the role of their close ones is crucial – yet often burdensome. Family care, however, is not purely about performing care tasks; it is also and primarily about values, (moral) dilemmas, and expectations. Especially considering the growing pressure on families due to societal changes, support for family caregivers is essential. Insight into the complex and normative nature of family care can help us better understand why people are often determined to care. To engage a broader audience, the graphic novel 'Naasten' (Dutch for: Loved ones) was developed together with comic artists. This interdisciplinary project yielded relevant insights for other researchers interested in using artistic methods. This thesis argues that, when carefully applied, and particularly within education, graphic novels like 'Naasten' can foster dialogue. Such dialogue is important, since family care can be both a disruptive and deeply valuable experience.