Holding still, together: Portraying Parkinson’s care

Authors

Thieme Stap
Richard Grol
Jur Koksma

Keywords:

Person-centred care, Photography, Learning, Perspective, Education, Parkinson

Synopsis

This book provides unique insights into how health professionals and people with Parkinson’s disease shape care together. It shows both the courage and vulnerabilities of those who have to face this disease. It consists of photos of people with Parkinson’s disease and their care professionals, both of their interaction and portrayed individually, interwoven with fragments of their dialogue about meaningful care.

This book is an integral part of a research project at Radboud university medical center into person-centred care. With it, we hope to contribute to a positive, hopeful vision of ever-improving Parkinson’s care.

This is the English language edition of Holding still, together. A Dutch translation of this book can be viewed, for free, at: https://books.radbouduniversitypress.nl/index.php/rup/catalog/book/holding_still_NL

Author Biographies

Thieme Stap

 Thieme Stap is promovendus aan de Radboudumc Health Academy, binnen het PhD-project: Transformatief Leren in Parkinsonzorg Innovaties.

Richard Grol

Richard Grol is emeritus hoogleraar kwaliteit van zorg aan het Radboud Universitair Medisch Centrum te Nijmegen en het Maastricht Medisch Centrum. Hij is tevens de fotograaf in dit project.

Jur Koksma

Jur Koksma is associate-professor aan de Radboud Universitair Medisch Centrum Health Academy, op de onderzoekslijn transformatief leren in de zorg.

Cover image

Published

September 21, 2023

Series

Details about the available publication format: PDF

PDF

ISBN-13 (15)

9789493296107